Travelling with a stoma | by Kevin

Travelling with a stoma can feel daunting, especially if you’re new to it but with the right preparation, it doesn’t have to stop you from going anywhere. I travel a lot for work, and each trip brings a slightly different experience. In this blog, I’ll share some of my real-life travel moments and offer tips that have helped me make journeys smoother and more stress-free.

On the move: my experience travelling with a stoma

One thing I’ve realised is that living with a stoma doesn’t mean putting life or travel on pause. I’ve taken countless flights, stayed in a variety of hotels, and passed through airports all over the world. Some trips were easy, others brought surprises but the biggest lesson I’ve learned is that preparation is everything. Whether it’s a long-haul flight or a short domestic trip, these tips will help you feel confident and in control when traveling with a stoma.

Packing: better to overprepare than underpack

When it comes to packing for my stoma, running out of supplies mid-trip is not an option. I always pack like I’m going away for longer than I am, my wife always comments on how much stuff I take. One piece of advice is to call the airline and explain your situation, the airline asks a few questions and free of charge have this added to my ticket as a medical bag where I can have an additional bag with all my stoma supplies. This helps as a I can carry some supplies with me and also some in my case. (The airline has asked for evidence of my condition and a simple letter from your stoma nurse or doctor worked for me).

My packing checklist:

• Double (or triple) the supplies you’d normally use for the time you’re away
• Bring a change of clothes in your hand luggage
• Include a small, discreet travel bag for daily use
• Bring odour-neutralising sprays or deodorant drops
• Hand sanitiser and barrier wipes are a must
• Pro tip: Always split your supplies between carry-on and checked luggage, just in case one bag goes missing

Airport security: be calm, be ready

Airport security can be unpredictable. Sometimes it’s smooth, other times a pat-down or explanation is needed. I used to dread this, but now I’ve got a routine. I try to communicate with the security team straight away and let them know – before I wouldn’t say anything due to being nervous, and have your medical certification with you, if you don’t have one or are unsure what this is speak to your stoma nurse. This has helped me navigate airport security where English may not be their first language and the small pocket-sized document helps to explain the situation.

Other ways to make it easier:

• Wear comfortable, loose-fitting clothes that won’t irritate your stoma during the flight or trigger questions during a pat-down.
• Let the security officer know discreetly that you have a medical device. You can show them the card and ask to speak in private if needed. I’ve had security staff thank me for being prepared it really does make the process faster and more respectful for everyone involved.

Flying: what I’ve learned

Long flights used to make me anxious, especially worrying about pouch ballooning or leaks. Even to the point I would starve myself before and eat very little on the plane so I would have to do little or no pouch empties this just did not help the way I felt and created me to feel unwell and at times very dehydrated, But a few adjustments changed everything.

Top flying tips:

• Avoid fizzy drinks before and during the flight
• Empty your pouch just before boarding
• Wear clothes that give you easy access, just in case
• Choose an aisle seat if you think you’ll need frequent toilet access
• Use fragrance drops in your pouch if you’re worried of smells after a pouch change or emptying your pouch
• And remember: the cabin crew are professionals. Don’t hesitate to ask for help or explain your needs if something comes up during the flight

Bonus tips for smooth travels

• Travel insurance: Make sure it covers pre-existing conditions and stoma-related care
• Stay hydrated: Especially on flights dehydration can affect your output
• Eat safe: Try to stick with foods you know, especially in the first couple of days
• Know where help is: Research local stoma support groups or clinics just in case

Travelling with a stoma takes a bit more planning, but it shouldn’t hold you back. With the right mindset and some practical tools, you can go anywhere and do anything. It’s not always perfect but every trip helps you learn, grow, and gain confidence. Don’t let the fear of the unknown stop you from seeing the world.

Kevin
@thestomaguy