Common worries that ostomates have | by Nikki
I’ve said it before and I’ll say it again: having stoma surgery is life-changing. With something that is life-changing comes worries. I’ve come up with a few points that I worried about (and sometimes still worry about), and a few little pointers on how to help.
What can I wear now?
Anything. You can wear anything you’re comfortable in. I find wearing a support band can sometimes cover up my stoma bag in tighter outfits but really that isn’t necessary. The person that notices your stoma most is you. Wear what makes you happy and confident. That will shine through much brighter than the outline of a bag.
Will I smell?
You won’t and don’t smell, unless you have a leak (we will cover that point later on).Iin fact, you might smell less because your wind (if you have a colostomy or an ileostomy) will go into your bag so you can’t even be blamed for the “who did it?” when somebody drops a nasty smell in a public area.
What does this mean for my relationship?
It means that if your partner is really the one for you, nothing changes. They will be understanding, patient, kind and empathetic. Because that’s what you need.
What about work?
Most people with a stoma still manage to work, they hold down jobs. You can ask for things to be adapted at work slightly for you. After the initial healing process, you can go back to normal, slowly. Remember surgery is huge and it’ll take some time for you to have the same energy again.
Leaks, how do I deal with them?
Leaks was one of my biggest fears. Over the first few months of having a stoma, you will visit your stoma nurse to work out what products and accessories work best for you. It’s a bit trial and error but within a few months, you’ll have a routine that works and shouldn’t have regular leaks. If you do, it’s time to head back to the stoma nurse and they will be able to help you.
Will I be able to exercise?
The simple answer to this one is yes, you will be able to. You’ll need to be signed off by your surgeon to start exercising and they will give you guidance as to where to start. Slowly you can build up and get back to exercising, even if your routine needs to be adapted slightly.
Can I still go on holiday?
Absolutely, yes, you can. It takes a little more planning but you can travel as much or as little as you like. Long-haul flights or a staycation for a night or two. Don’t let your stoma stop you.
Having a stoma is life-changing but not life-limiting. Soon you’ll be feeling back to the old you with a new little quirk, which quite honestly, will be the least interesting thing about you. Give yourself time, build slowly. If those worries are stopping you, reach out to the online community, or friends and family for more support. There are lots of us out here, we are part of a special gang and when the going gets tough, there will always be someone willing to help you. ❤️
-
-
-
-
-
-
